Saturday, May 1, 2010
Time Line for a Cure
I thought it would be useful for everyone, including myself, to have an overall time line of doctors, tests, results and surgeries:
October 2009 - after 10 years of off and on abdominal pain, I begin to experience extreme pain and pressure in my lower right abdomen. I am unable to keep food down due to nausea, and am extremely fatigued
November 25, 2009 - appointment with OBGYN Dr. Pinzon to discuss condition, she orders an ultra sound
December 21, 2009 - t/v ultra sound reveals a complex ovarian cyst and two major fibroids. Dr. Pinzon orders an MRI.
February 17, 2010 - MRI with and without contrast completed at University Radiology.
February 27, 2010 - appointment with Dr. Pinzon to discuss MRI results, which revealed a thick cell wall around the ovarian cyst that contained internal bleeding and complexity. Pinzon recommends consulting with a gynecological oncologist. She also orders a CA-125 test.
March 8, 2010 - CA - 125 test completed at LabCorp (results negative)
March 11, 2010 - first meeting at CINJ (Cancer Institute of New Jersey) with Dr. Alison Wagreich, who reviews MRI and orders a CT scan and endoscopy; she indicates that ongoing health issues could be caused by a necrotic fibroid leaking fluid into the abdomen. Because of my symptoms and the complexity of the ovarian cyst, she recommends surgery.
March 18, 2010 - CT Scan with and without contrast completed at University Radiology
April 1, 2010 - second meeting at CINJ with Dr. Wagreich; small new cyst discovered - CT revealed complex cyst is still potentially cancerous. Surgery is scheduled to remove cyst and fibroids and test for cancer - hysterectomy pre-authorized depending on the biopsy results.
April 2, 2010 - endoscopy performed by Dr. Kastuar (results mild esophagitis, mild gastritis, no bacteria, duodenal diverticulum)
April 5, 2010 - RWJ (Robert Wood Johnson Hospital ) Pre-Admission Testing (EKG, chest x-rays, blood work)
April 21, 2010 - laproscopic surgery preformed at RWJ: removal of fallopian tube, ovarian cyst, two fibroids, and uterine palap - cross section of cyst reveals it's non-cancerous. During the course of the surgery, a general surgeon is called in for a consult to look at my "deformed" appendix. Surgeon gets familial approval to remove appendix.
April 22, 2010 - released from RWJ after slight complications
April 27, 2010 - biopsy of the appendix reveals a 3cm carcinoid tumor - referred to Dr. Maloney Patel for right hemicolectomy surgery
April 28, 2010 - meeting with Dr. Maloney Patel to discuss surgery. She confirms that right hemicolectomy is the next course of action, and orders a CT and colonoscopy prior to surgery. Surgery is scheduled for June 8, 2010. Additionally, she explains that my case will be presented to the RWJ Tumor Board later this month.
May 5, 2010 - Dr. Maloney Patel presents my case to RWJ Tumor Board
May 6, 2010 - follow up appointment with Dr. Wagreich
May 17, 2010 - signed out pathology slides from RWJ
May 20, 2010 - appointment with Dr. G. Nash at Sloan-Kettering
May 28, 2010 - pre admission testing at RWJ
June 1, 2010 - follow up CT scan at University Radiology
June 7, 2010 - colonoscopy
June 8, 2010 - right hemicolectomy surgery - 3-5 days hospital recovery; 3-6 weeks outpatient recovery
Not Yet Scheduled
Octreoscan Test (if needed)