"We don't accomplish anything in this world alone... and whatever
happens is the result of the whole tapestry of one's life and all the
weavings of individual threads form one to another that creates
something." Sandra Day O'Connor.
Recently, I received an email from Grace Goldstein, the Chief Operating Officer of the Carcinoid Cancer Foundation, letting me know that CCF had featured my blog on their Facebook page. I was honored and touched by her faith in my words.
...from CCF's Facebook Page
Sometimes I forget that I have a rare disease. And sometimes, I think
I'm cured. And then I get test results and realize - nope... I'm still a
medical mystery. CCF is an amazing place where carcinoid patients can connect and educate themselves about this rare cancer.
I would like to share a recent message I got from a fellow zebra, Christina, because sometimes I forget that I write for more than just myself. I get lazy and down because I think - who's really listening anyway...right? I mean... I'm just writing words so they can aimlessly float around in a starless cyberspace... so who cares if I go for a Red Mango Fro-Yo instead of blogging? (Red Mango is delicious by the way, but I digress.)
But Christina and Grace, and all my fellow carcinoid friends, help remind me that one of the purposes of my blog is to connect --which not only might help others facing the same baffling carcinoid questions that I do, but also help ME continue on with this quest, which sometimes seems like a never-ending riddle that gets even more complex with each lab print out and doctor's furrowed brow.
Below is part of an inspiring email I received from a fellow zebra Christina (visit her site at Caring Bridge)
Hi Beautiful Marlena!
My name is Christina and I am a huge fan
of yours.. not only have you lifted my spirits, helped me to feel less
alone (less alone regarding the whole Carcinoid nightmare), your
whimsical and soulful writing has also opened my heart and helped me
heal.. thank you dear one.
I was finally diagnosed with Carcinoid Syndrome January this year (having been misdiagnosed for over 5 years ) By February I was in
Carcinoid Crisis and by Feb 21 my surgeries ( liver 70% taken out. Over a
foot of small intestines taken out and several organs removed for good
measure). Since then I have been in ridiculous pain 24 / 7. Have had bile leak, followed by a mean bout of painful gut retching pancreatitis, stints put in and several other issues that have come up
Needless to say I feel lost, tired and scared…..
To say it has been a Hell ride would be an understatement.. it has been –
by far – the worst experience of my life.. yet there have been some
miracles along the way .. Back to YOU. Thank you for your brave willingness to share your thoughts, efforts, feelings, hopes, … your LIFE! You are such an inspirational Lady and this makes reading your posts that much more interesting and uplifting!
So, dear lady, I wish you and your loved ones AND CCF all the love and healing in the world. Hopefully our paths will cross. And may you have great health and many years of adventure and bliss and love!
My Bikram yoga instructor began Friday's evening class with a stern warning,"If your fingers start to go numb, it's very important to tell me right away so I can give you an electrolyte pack, otherwise your face will go numb and you won't be able to ask for one."
He was not joking.
It was sort of like hearing a perky flight attendant go through the oxygen mask "safety demonstration" right before taking off in a flying oblong box... unnerving.
Woody Allen said, "80% of success is showing up." Obviously, Woody Allen has never taken a hot yoga class before.
Bikram (aka hot yoga) is one of the hardest things I've ever survived - and as a "beginner"... surviving is the best you can hope for. Bikram definitely requires more than just showing up; it requires unwavering willpower and fearless focus in order to complete the 26 grueling postures in a studio that's ideally set at 105*F with 40% humidity.
You start sweating about 4 min into a Bikram class. And when I say sweat, I mean water gushing out of every pour in your body - so much sweat that you can't even grip your ankles because your hands slide right off.
There is an undeniable funk about hot yoga rooms, despite odor eating machines and regularly shampooed carpets. I guess that's part of it. You got to breath in everything in life - even the unpleasant - in order to push yourself towards improvement.
Our instructor was incredibly motivational. When students started dropping (and some always do), he would stand next to their mats and assure them "I'm with you." In addition to periodic reminders about finger numbness, he constantly reminded us to breath into poses. People tend to hold their breath when they are in pain; and "relaxing" into pain and nausea isn't an easy task. It's nearly impossible.
But that's the entire point. Bikram teaches you how to deal with your body when it's "uncomfortable" - which is exactly what people desperately try to avoid feeling on a daily basis. It's about making thousands of tiny adjustments in order to just get from breath to breath - squeezing, pulling and bending your body into perfect form under imperfect conditions.
You may be thinking: if it's that hard, why do people do it? Because after finishing a class, you feel completely cleansed - spiritually and physically. Bikram gives you clarity, which is worth the suffering.
So tomorrow I'll go back to the studio - to breath in the funk and exhale everything not essential for surviving the moment.
My yoga class… is one long, hot meditation. We put incredible pressure on you to teach you to break your attachment to external things and go within. Instead of blaming others for your own weakness, fear and depression, you will learn to take responsibility for your own life.
You’ve got to face yourself in the mirror, every part you don’t like, every mistake you make, every excuse your mind creates to limit your potential liberation – there’s nowhere to run, nowhere to hide. No escape from reality…
After you learn to discipline your body and mind under these conditions, you will truly be able to concentrate; no external will be able to break your powerful focus.
That’s why I say that the darkest place in the world is under the brightest lamp. In the Torture Chamber of my class, you will find a beautiful light, and the source of that light is within you.