tag:blogger.com,1999:blog-5390887323225900020.post3659438001465442312..comments2023-08-10T07:04:41.105-04:00Comments on Channeling Jackie-O: Educating the Medical World about Carcinoid Cancer - One Dentist at a TimeUnknownnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5390887323225900020.post-61178238877632551972011-02-08T22:31:01.790-05:002011-02-08T22:31:01.790-05:00Hi Sarah! I hope you find some useful stuff on my ...Hi Sarah! I hope you find some useful stuff on my blog - if you click on the "diet" label below, it should take you to an entry about what to eat post-surgery...that was the only thing that was a little tricky. My surgery was in July and as you can see from my latest blog, I'm eating like a champ now! It's silly for me to say, "don't be scared" because everyone is nervous before major surgery...but I promise a hemicolectomy is not as bad as it sounds - You'll do great! I'll keep you in my prayers and thoughts on Friday. If you want to send me an email at any time - PLEASE don't hesitate: marlenajohnston@hotmail.com. There are a lot of great people in the Carcinoid community, you will find support at every turn. Hang in there...it'll be over before you know it :) (PS - my one BIG surgery tip is to press a pillow over your belly on the ride home from the hospital...I soon learned that it really helps cushion the bumps.)Ms. Marlena Johnstonhttps://www.blogger.com/profile/11956249429973853342noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-51113306622919874992011-02-07T08:58:19.428-05:002011-02-07T08:58:19.428-05:00Amazing how they can do surgeries now-a-days.
I jo...Amazing how they can do surgeries now-a-days.<br />I joined your page because I was just diagnosed with a 2cm appediceal carcinoid tumor and will be under going a hemicolectomy on Friday of this week. I am petrified but have been calmed by your grace in your similar situation.Unknownhttps://www.blogger.com/profile/08001256524155354618noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-11811448832901195212011-02-05T16:13:17.760-05:002011-02-05T16:13:17.760-05:00Thanks Roger, Looking at it now - I'll add it ...Thanks Roger, Looking at it now - I'll add it to my links.Ms. Marlena Johnstonhttps://www.blogger.com/profile/11956249429973853342noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-49260809898536109222011-02-03T03:10:07.925-05:002011-02-03T03:10:07.925-05:00If you are interested in neuroendocrine tumors / c...If you are interested in neuroendocrine tumors / carcinoids a new scientific website has started that focus only on these diseases.<br /><br />Check. www.NETipedia.orgRoger Belusahttp://www.netipedia.orgnoreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-72201360454741758762011-02-02T19:33:17.558-05:002011-02-02T19:33:17.558-05:00You know, I have been tempted to joke around with ...You know, I have been tempted to joke around with the techs, but I never do! I did send my info to Dr Oz. haha. I might be too shy to ever go on TV, but would be willing to talk about my story. <br /><br />Wow...a DOUBLE lung transplant...that's amazing and I'm glad he's doing well.Stephaniehttps://www.blogger.com/profile/15806063016332212065noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-15636527002330845272011-01-31T21:33:55.640-05:002011-01-31T21:33:55.640-05:00Stephanie - I can only imagine! Do you ever get te...Stephanie - I can only imagine! Do you ever get tempted to mess around a little.... look at them quizzically and say, "what do you mean there is only one lung? I had two when I got here!" Your story is so incredible - did you ever apply to Dr. Oz? We just had a kid in our town who had a different rare disease who had to have a DOUBLE lung transplant! He's doing great. Amazing. I bet that scar will fade to nothing - unfortunately your surgery was way more complicated than mine...I'm so glad you are feeling good and taking pictures and baking treats!Ms. Marlena Johnstonhttps://www.blogger.com/profile/11956249429973853342noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-55121406650800033852011-01-30T21:47:43.191-05:002011-01-30T21:47:43.191-05:00You have been a wonderful and needed adovcate! O...You have been a wonderful and needed adovcate! Oprah ..next stop. I encountered the same sor of thing with Post Polio Syndrome. The National Polio Organization put out a general letter to all physicians explaining it. Maybe the Cancer Foundation could do the same with Carcinoid Cancer ?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-86088955152389937682011-01-28T22:44:30.770-05:002011-01-28T22:44:30.770-05:00This sounds exactly like the conversations I'v...This sounds exactly like the conversations I've had with every new doctor, nurse, x-ray tech, etc...over the past year. The added bonus for me is that I have to reassure the x-ray tech that, yes, they did do it right...there is only one lung. :-) <br /><br />Wow, that was a really small incision. My scar is about 6 or 7 inches and because of my tumor size, the less invasive surgery was not an option, but it's very neat and smooth.Stephaniehttps://www.blogger.com/profile/15806063016332212065noreply@blogger.com