tag:blogger.com,1999:blog-5390887323225900020.post1615109240573798365..comments2023-08-10T07:04:41.105-04:00Comments on Channeling Jackie-O: Note to Self...Unknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5390887323225900020.post-41359602736895724112010-08-12T23:36:33.619-04:002010-08-12T23:36:33.619-04:00Thanks Marlena! This journey has been such a sobe...Thanks Marlena! This journey has been such a sobering experience. I felt completely healthy and then ended up having to have a major surgery all within the course of 3 months! Recovery felt like it took forever, but fortunately, I feel great now. Baking and doing things that I was so scared that cancer was going to take away. I wish you all the best in your own recovery and am glad that you are doing well and staying positive, which is sooo very important.Stephaniehttps://www.blogger.com/profile/15806063016332212065noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-81487753662696701752010-08-11T17:46:30.880-04:002010-08-11T17:46:30.880-04:00Stephanie - thanks for sharing your story, and lea...Stephanie - thanks for sharing your story, and leading me to your blog! It's visually stunning, and has some great carcinoid information (and recipes - especially the one bowl chocolate cupcakes). I look forward to reading about your future adventures.Ms. Marlena Johnstonhttps://www.blogger.com/profile/11956249429973853342noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-35579175576105718282010-08-11T17:39:47.501-04:002010-08-11T17:39:47.501-04:00Thank you Maryann for the wonderful information!Thank you Maryann for the wonderful information!Ms. Marlena Johnstonhttps://www.blogger.com/profile/11956249429973853342noreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-78433848786937665242010-08-11T09:11:57.757-04:002010-08-11T09:11:57.757-04:00I am reading your blog and understand where you ar...I am reading your blog and understand where you are coming from. And I will be reading about your journey hopefully for many years to come. Know you are not alone in this and there support out there to help with the journey.<br /><br />I was dx in 2001 after 7 years of searching. Please know there are many 20 to 30 year survivors out there. And that the data of survival is old in many cases. That the past 10 years there have been great improvements in the treatment of this disease. We still have far to go.<br /> The main goal is to catch the disease early and to make sure you are getting proper treatments . But the most important thing is to stay on top of testing, including CT scans Blood work ( many times will show a change before a scan), Orctreotide scan, and your treatments .Some may include surgery, chemo emobilization, RFA and with octreotide these are just a few options patients have.<br /><br />As a founder of The Carcinoid Cancer Awareness Network, Our mission is to intensify the awareness of Neuroendocrine Tumors & Carcinoid Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years CCAN has produced 19 conferences. Many are available to view on our website. DVD’s & CD ROMS are also available. Our toll free phone support line is answered only by a patient and caregiver 7 days a week. We also send patients free information packs. If we can assist you our anyone reading your blog . Call 866 850 9555. or got to www,carcinoidawareness.org<br /><br />Maryann Wahmann .Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5390887323225900020.post-41345767708670077142010-08-10T15:48:51.788-04:002010-08-10T15:48:51.788-04:00Hi--i just discovered your blog and wanted to say ...Hi--i just discovered your blog and wanted to say hello...<br /><br />I am a carcinoid cancer survivor as well! I relate very much to what you've written here...and have often considered my own cancer a betrayl. My tumor was quite large (15 cm) and my doctors think i could have had it for at least a decade. To think that it was there and growing and that I never knew felt very strange and hurtful. But, as you stated above, we can only control our own attitude and outlook on life despite this carcinoid. <br /><br />My blog and my story is here...<br />visit if you like:<br />www.stephanietorres.blogspot.comStephaniehttps://www.blogger.com/profile/15806063016332212065noreply@blogger.com